H2020
EJP RD
European Joint Programme on Rare Diseases
- Programme
- Horizon 2020
- Started
- Ends
- Duration
- 68 months
- Total cost
- EUR 100,655,231
- EU contribution
- EUR 55,073,831
- Participants
- 150 from 35 countries
- Topic
- H2020_SC1-BHC-04-2018
- Grant agreement
- 825575
Coordinated by Institut National de la Sante et de la Recherche Medicale (FRFrance).
Consortium
EU contribution per participant as the open data of CORDIS states it; for a participant with linked third parties it may include their share, and a participant whose amount the data does not hold or cannot make consistent shows Not stated. A participant who left the project is not listed; see the history below.
| Organisation | Country | Role | EU contribution | Recognised by |
|---|---|---|---|---|
| Institut National de la Sante et de la Recherche Medicale | FRFrance | Coordinator | EUR 8,741,332 | known name (0.95) |
| Center of Medical Genetics and Primary Health Care | AMArmenia | Third party | Not stated | PIC (1.00) |
| Ait Austrian Institute of Technology GmbH | ATAustria | Participant | EUR 933,602 | known name (0.95) |
| Biobanks and Biomolecular Resources Research Infrastructure Consortium (Bbmri-Eric) | ATAustria | Participant | EUR 1,631,403 | PIC (1.00) |
| Fonds Zur Förderung der Wissenschaftlichen Forschung | ATAustria | Participant | EUR 522,763 | known name (0.95) |
| Gemeinnutzige Salzburger Landeskliniken Betriebsgesellschaft | ATAustria | Third party | Not stated | known name (0.95) |
| Ludwig Boltzmann Gesellschaft Osterreichische Vereinigung Zur Forderung der Wissenschaftlichen Forschung | ATAustria | Participant | EUR 147,054 | PIC (1.00) |
| Medizinische Universitaet Wien | ATAustria | Third party | Not stated | PIC (1.00) |
| Medizinische Universitat Graz | ATAustria | Third party | Not stated | known name (0.95) |
| Paracelsus Medizinische Privatuniversitat Salzburg - Privatstiftung | ATAustria | Participant | EUR 163,358 | PIC (1.00) |
| St Anna Kinderkrebsforschung Verein | ATAustria | Participant | EUR 10,633 | PIC (1.00) |
| St. Anna Kinderkrebsforschung GmbH | ATAustria | Participant | EUR 81,813 | PIC (1.00) |
| European Organisation for Research and Treatment of Cancer Aisbl | BEBelgium | Participant | EUR 5,150 | PIC (1.00) |
| Fonds de la Recherche Scientifique- Fnrs | BEBelgium | Participant | EUR 247,674 | known name (0.95) |
| Fonds Voor Wetenschappelijk Onderzoek-Vlaanderen | BEBelgium | Participant | EUR 574,066 | PIC (1.00) |
| Katholieke Universiteit Leuven | BEBelgium | Participant | EUR 94,952 | PIC (1.00) |
| Sciensano | BEBelgium | Third party | Not stated | known name (0.95) |
| Universiteit Hasselt | BEBelgium | Participant | EUR 186,427 | known name (0.95) |
| Bulgarian Association for Promotion of Education and Science | BGBulgaria | Third party | Not stated | PIC (1.00) |
| Canadian Institutes of Health Research | CACanada | Participant | EUR 0 | PIC (1.00) |
| Fonds de Recherche du Quebec - Sante | CACanada | Participant | EUR 0 | PIC (1.00) |
| Blackswan Foundation | CHSwitzerland | Participant | EUR 201,613 | PIC (1.00) |
| Les Hopitaux Universitaires de Geneve | CHSwitzerland | Third party | Not stated | PIC (1.00) |
| Schweizerischer Nationalfonds Zur Forderung der Wissenschaftlichen Forschung | CHSwitzerland | Participant | EUR 712,349 | PIC (1.00) |
| Sib Swiss Institute of Bioinformatics | CHSwitzerland | Third party | Not stated | PIC (1.00) |
| Masarykova univerzita | CZCzechia | Third party | Not stated | known name (0.95) |
| Ministerstvo Skolstvi, Mladeze a Telovychovy | CZCzechia | Participant | EUR 469,289 | known name (0.95) |
| Bundesinstitut Fur Arzneimittel und Medizinprodukte | DEGermany | Third party | Not stated | known name (0.97) |
| Charite - Universitaetsmedizin Berlin | DEGermany | Participant | EUR 226,192 | PIC (1.00) |
| Deutsche Forschungsgemeinschaft Ev | DEGermany | Participant | EUR 0 | known name (0.97) |
| Deutsches Krebsforschungszentrum Heidelberg | DEGermany | Third party | Not stated | known name (0.95) |
| Deutsches Zentrum Fur Luft - Und Raumfahrt Ev | DEGermany | Participant | EUR 2,605,091 | known name (0.97) |
| Eberhard Karls Universitaet Tuebingen | DEGermany | Participant | EUR 443,328 | PIC (1.00) |
| European Molecular Biology Laboratory | DEGermany | Participant | EUR 1,993,628 | PIC (1.00) |
| Fraunhofer Gesellschaft Zur Forderung der Angewandten Forschung Ev | DEGermany | Participant | EUR 167,549 | known name (0.95) |
| Helios Dr. Horst Schmidt Kliniken Wiesbaden GmbH | DEGermany | Participant | EUR 0 | known name (0.97) |
| Infrafrontier GmbH | DEGermany | Participant | EUR 191,054 | PIC (1.00) |
| Johann Wolfgang Goethe-Universitaet Frankfurt Am Main | DEGermany | Participant | EUR 1,083,145 | PIC (1.00) |
| Klinikum der Johann Wolfgang von Goethe Universitaet | DEGermany | Third party | Not stated | PIC (1.00) |
| Klinikum der Technischen Universität München (Tum Klinikum) | DEGermany | Third party | Not stated | known name (0.97) |
| Medizinische Hochschule Hannover | DEGermany | Participant | EUR 29,366 | known name (0.97) |
| Ruhr-Universitaet Bochum | DEGermany | Participant | EUR 232,179 | PIC (1.00) |
| Universitaetsklinikum Aachen | DEGermany | Participant | EUR 806,640 | PIC (1.00) |
| Universitaetsklinikum Freiburg | DEGermany | Participant | EUR 169,977 | PIC (1.00) |
| Universitaetsklinikum Hamburg-Eppendorf | DEGermany | Participant | EUR 34,118 | PIC (1.00) |
| Universitaetsklinikum Tuebingen | DEGermany | Third party | Not stated | PIC (1.00) |
| Universitatsklinikum Heidelberg | DEGermany | Participant | EUR 760,408 | known name (0.97) |
| Universitatsklinikum Schleswig-Holstein | DEGermany | Third party | Not stated | known name (0.95) |
| Danmarks Tekniske Universitet | DKDenmark | Third party | Not stated | known name (0.95) |
| Sotsiaalministeerium | EEEstonia | Participant | EUR 55,444 | known name (0.95) |
| Tartu Ulikool | EEEstonia | Third party | Not stated | known name (0.95) |
| Barcelona Supercomputing Center Centro Nacional de Supercomputacion | ESSpain | Third party | Not stated | VAT number (0.97) |
| Consorcio Centro de Investigacion Biomedica en Red M.P. | ESSpain | Participant | EUR 46,428 | PIC (1.00) |
| Consorcio Para la Explotacion del Centro Nacional de Analisis Genomico | ESSpain | Participant | EUR 226,341 | PIC (1.00) |
| Fundacio Centre de Regulacio Genomica | ESSpain | Participant | EUR 955,307 | known name (0.95) |
| Fundacio Hospital Universitari Vall D'Hebron - Institut de Recerca | ESSpain | Third party | Not stated | known name (0.97) |
| Fundacio Privada Per a la Recerca i la Docencia Sant Joan de Deu | ESSpain | Third party | Not stated | PIC (1.00) |
| Instituto de Salud Carlos III | ESSpain | Participant | EUR 860,312 | VAT number (0.97) |
| Servicio Madrileno de Salud | ESSpain | Participant | EUR 48,291 | known name (0.97) |
| Universidad Politecnica de Madrid | ESSpain | Participant | EUR 529,885 | known name (0.95) |
| Csc-Tieteen Tietotekniikan Keskus OY | FIFinland | Third party | Not stated | known name (0.95) |
| Rinnekoti Saatio | FIFinland | Third party | Not stated | PIC (1.00) |
| Suomen Akatemia | FIFinland | Participant | EUR 511,539 | known name (0.95) |
| Terveyden Ja Hyvinvoinnin Laitos | FIFinland | Third party | Not stated | known name (0.95) |
| Agence Nationale de la Recherche | FRFrance | Participant | EUR 2,406,235 | known name (0.95) |
| Ass Francaise Contre les Myopathies | FRFrance | Participant | EUR 5,150 | PIC (1.00) |
| assistance publique hopitaux de paris | FRFrance | Participant | EUR 730,474 | name shared with others (0.80) |
| Centre de Lutte Contre le Cancer Leon Berard | FRFrance | Participant | EUR 14,033 | PIC (1.00) |
| Centre Hospitalier Reg Universitaire Dijon | FRFrance | Third party | Not stated | PIC (1.00) |
| Ecrin European Clinical Research Infrastructure Network | FRFrance | Participant | EUR 277,143 | PIC (1.00) |
| Eurordis - Rare Diseases Europe | FRFrance | Participant | EUR 941,764 | PIC (1.00) |
| Fondation Maladies Rares | FRFrance | Participant | EUR 1,677,717 | PIC (1.00) |
| Hopitaux Universitaires de Strasbourg | FRFrance | Participant | EUR 11,872 | known name (0.95) |
| Hospices Civils de Lyon | FRFrance | Participant | EUR 45,333 | known name (0.95) |
| Imagine Institut des Maladies Genetiques Necker Enfants Malades Fondation | FRFrance | Participant | EUR 200,604 | PIC (1.00) |
| Inserm Transfert SA | FRFrance | Participant | EUR 366,765 | known name (0.95) |
| Institut Curie | FRFrance | Third party | Not stated | known name (0.95) |
| Universite D'Aix Marseille | FRFrance | Third party | Not stated | known name (0.95) |
| Universite Lyon 1 Claude Bernard | FRFrance | Third party | Not stated | PIC (1.00) |
| Department of Health | GBUnited Kingdom | Third party | Not stated | known name (0.95) |
| Manchester University Nhs Foundation Trust | GBUnited Kingdom | Third party | Not stated | known name (0.95) |
| The Chancellor Masters and Scholars of the University of Cambridge | GBUnited Kingdom | Third party | Not stated | known name (0.95) |
| The Newcastle Upon Tyne Hospitals Nhs Foundation Trust | GBUnited Kingdom | Participant | EUR 0 | known name (0.95) |
| The University of Liverpool | GBUnited Kingdom | Participant | EUR 52,229 | PIC (1.00) |
| The University of Manchester | GBUnited Kingdom | Third party | Not stated | known name (0.95) |
| University of Glasgow | GBUnited Kingdom | Third party | Not stated | known name (0.95) |
| University of Leicester | GBUnited Kingdom | Participant | EUR 1,294,865 | known name (0.95) |
| Georgian Foundation for Genetic and Rare Diseases | GEGeorgia | Third party | Not stated | PIC (1.00) |
| Geniki Grammatia Erevnas Kai Kainotomias | GRGreece | Participant | EUR 20,610 | PIC (1.00) |
| Klinika za Djecje Bolesti Zagreb | HRCroatia | Third party | Not stated | known name (0.95) |
| Nemzeti Kutatasi Fejlesztesi Es Innovacios Hivatal | HUHungary | Participant | EUR 189,576 | known name (0.95) |
| Health Service Executive | IEIreland | Third party | Not stated | known name (0.95) |
| The Health Research Board | IEIreland | Participant | EUR 331,346 | known name (0.95) |
| Medical Research Infrastructure Development and Health Services Fund By the Sheba Medical Center | ILIsrael | Third party | Not stated | PIC (1.00) |
| Agenzia Per la Promozione della Ricerca Europea | ITItaly | Third party | Not stated | PIC (1.00) |
| Azienda Ospedaliera Universitaria Senese | ITItaly | Participant | EUR 12,855 | VAT number (0.97) |
| Azienda Ospedaliero Universitaria Pisana | ITItaly | Participant | EUR 12,282 | known name (0.95) |
| Azienda Sanitaria Universitaria Friuli Centrale | ITItaly | Participant | EUR 188,586 | known name (0.95) |
| Centro di Ricerca, Sviluppo e Studi Superiori in Sardegna Società a Responsabilità Limitata | ITItaly | Third party | Not stated | PIC (1.00) |
| Consorzio Per Valutazioni Biologiche e Farmacologiche | ITItaly | Participant | EUR 503,953 | PIC (1.00) |
| Fondazione Per la Ricerca Farmacologica Gianni Benzi Onlus | ITItaly | Participant | EUR 246,798 | PIC (1.00) |
| Fondazione Regionale Per la Ricerca Biomedica | ITItaly | Participant | EUR 546,606 | PIC (1.00) |
| Fondazione Telethon Ets | ITItaly | Participant | EUR 1,010,694 | PIC (1.00) |
| Istituto Ortopedico Rizzoli | ITItaly | Participant | EUR 93,215 | PIC (1.00) |
| Istituto Superiore di Sanita | ITItaly | Participant | EUR 606,235 | known name (0.95) |
| Ministero Dell'Istruzione, Dell'Universita' e della Ricerca | ITItaly | Participant | EUR 7,261 | PIC (1.00) |
| Ministero Dell'Universita e della Ricerca | ITItaly | Participant | EUR 177,015 | PIC (1.00) |
| Ministero della Salute | ITItaly | Participant | EUR 1,458,099 | known name (0.95) |
| Ospedale Pediatrico Bambino Gesu | ITItaly | Third party | Not stated | PIC (1.00) |
| Regione Toscana | ITItaly | Participant | EUR 152,040 | known name (0.95) |
| Teddy - European Network of Excellence for Paediatric Clinical Research | ITItaly | Participant | EUR 173,451 | PIC (1.00) |
| Lietuvos mokslo taryba | LTLithuania | Participant | EUR 99,153 | known name (0.95) |
| Viesoji Istaiga Vilniaus Universiteto Ligonine Santaros Klinikos | LTLithuania | Participant | EUR 133,049 | known name (0.95) |
| Fonds National de la Recherche | LULuxembourg | Participant | EUR 307,773 | PIC (1.00) |
| Bernu Kliniska Universitates Slimnica Valsts Sia | LVLatvia | Third party | Not stated | VAT number (0.97) |
| Latvijas Zinatnes Padome | LVLatvia | Participant | EUR 8,581 | PIC (1.00) |
| Valsts Izglitibas Attistibas Agentura | LVLatvia | Participant | EUR 1,580 | known name (0.95) |
| Ministeru Ghas-Sahha U L-Anzjanita Attiva | MTMalta | Third party | Not stated | PIC (1.00) |
| Academisch Ziekenhuis Groningen | NLNetherlands | Participant | EUR 1,255,216 | PIC (1.00) |
| Academisch Ziekenhuis Leiden | NLNetherlands | Participant | EUR 1,962,613 | PIC (1.00) |
| Eatris Eric | NLNetherlands | Participant | EUR 939,540 | PIC (1.00) |
| Erasmus Universitair Medisch Centrum Rotterdam | NLNetherlands | Participant | EUR 24,564 | PIC (1.00) |
| Stichting Amsterdam Umc | NLNetherlands | Participant | EUR 962,455 | known name (0.95) |
| Stichting Dtl Projects | NLNetherlands | Third party | Not stated | PIC (1.00) |
| Stichting Health-Ri | NLNetherlands | Third party | Not stated | PIC (1.00) |
| Stichting Radboud Universitair Medisch Centrum | NLNetherlands | Participant | EUR 1,135,567 | PIC (1.00) |
| Stichting Radboud Universiteit | NLNetherlands | Participant | EUR 243,836 | known name (0.95) |
| Universitair Medisch Centrum Utrecht | NLNetherlands | Participant | EUR 34,118 | known name (0.95) |
| Universiteit Maastricht | NLNetherlands | Participant | EUR 759,956 | known name (0.95) |
| Zorgonderzoek Nederland Zon | NLNetherlands | Participant | EUR 2,902,149 | PIC (1.00) |
| Oslo Universitetssykehus Hf | NONorway | Third party | Not stated | known name (0.95) |
| Universitetet i Oslo | NONorway | Third party | Not stated | known name (0.95) |
| Gdanski Uniwersytet Medyczny | PLPoland | Participant | EUR 115,576 | known name (0.97) |
| Instytut Pomnik Centrum Zdrowia Dziecka | PLPoland | Participant | EUR 115,569 | known name (0.95) |
| Narodowe Centrum Badan i Rozwoju | PLPoland | Participant | EUR 498,445 | known name (0.97) |
| Warszawski Uniwersytet Medyczny | PLPoland | Participant | EUR 68,099 | known name (0.97) |
| Fundacao Para a Ciencia e a Tecnologia | PTPortugal | Participant | EUR 142,987 | VAT number (0.97) |
| Instituto Nacional de Saude Dr. Ricardo Jorge | PTPortugal | Participant | EUR 48,923 | known name (0.95) |
| Universitatea de Medicina Si Farmacie Grigore T Popa Din Iasi | RORomania | Third party | Not stated | known name (0.95) |
| Institut za Molekularnu Genetiku i Geneticko Inzenjerstvo | RSSerbia | Third party | Not stated | PIC (1.00) |
| Region Stockholm | SESweden | Third party | Not stated | known name (0.95) |
| Uppsala Universitet | SESweden | Third party | Not stated | known name (0.95) |
| Verket for Innovationssystem | SESweden | Participant | EUR 438,263 | known name (0.95) |
| Vetenskapsradet - Swedish Research Council | SESweden | Participant | EUR 643,527 | PIC (1.00) |
| Univerza v Ljubljani | SISlovenia | Third party | Not stated | known name (0.95) |
| Univerzitetni Klinicni Center Ljubljana | SISlovenia | Third party | Not stated | known name (0.95) |
| Slovenska Akademia Vied | SKSlovakia | Participant | EUR 126,705 | known name (0.95) |
| Acibadem Mehmet Ali Aydinlar University | TRTürkiye | Participant | EUR 214,964 | PIC (1.00) |
| Hacettepe Universitesi | TRTürkiye | Participant | EUR 49,413 | PIC (1.00) |
| Turkiye Bilimsel Ve Teknolojik Arastirma Kurumu | TRTürkiye | Participant | EUR 822,216 | PIC (1.00) |
Changes of the consortium
First seen on with 150 participants from 35 countries.
A snapshot of each project's members is taken once a month; a change is recorded when a snapshot differs from the one before. A project with no change listed has had the same members since it was first observed.
Project page on CORDIS (opens in new tab)
Where this comes from
- CORDIS: EU research projects (Horizon Europe, Horizon 2020, FP7)Last read on . Licence: Commission Decision 2011/833/EU (reuse of Commission documents). Source: CORDIS, European Commission.Participants and amounts as the Commission's CORDIS database states them.
EU contribution is the amount CORDIS's open data pays to the participant. For a participant with linked third parties it may include their share (the CORDIS page prints the net); an amount the data does not hold is left out, not counted as zero. EDF factsheets state none per participant, so EDF projects count as projects but add nothing to the amounts.
Organisation-level facts only: a name, a country, a role, an amount, a year. A participant is recognised by its PIC where the source gives one, otherwise by name; the page says which. How the data is built.