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HORIZON

ERDERA

EUROPEAN RARE DISEASES RESEARCH ALLIANCE

Programme
Horizon Europe
Started
Ends
Duration
84 months
Total cost
EUR 145,830,619
EU contribution
EUR 56,317,413
Participants
174 from 38 countries
Topic
HORIZON_HORIZON-HLTH-2023-DISEASE-07-01
Grant agreement
101156595

Coordinated by Institut National de la Sante et de la Recherche Medicale (FRFrance).

Consortium

EU contribution per participant as the open data of CORDIS states it; for a participant with linked third parties it may include their share, and a participant whose amount the data does not hold or cannot make consistent shows Not stated. A participant who left the project is not listed; see the history below.

Members of the consortium, coordinator first
OrganisationCountryRoleEU contributionRecognised by
Institut National de la Sante et de la Recherche MedicaleFRFranceCoordinatorEUR 4,874,326known name (0.95)
Ait Austrian Institute of Technology GmbHATAustriaParticipantEUR 141,252known name (0.95)
Biobanks and Biomolecular Resources Research Infrastructure Consortium (Bbmri-Eric)ATAustriaParticipantEUR 55,939PIC (1.00)
Fonds Zur Förderung der Wissenschaftlichen ForschungATAustriaParticipantEUR 794,931known name (0.95)
Paris-Lodron-Universitat SalzburgATAustriaParticipantEUR 158,736known name (0.95)
Sigmund Freud Privatuniversitat Wien GmbHATAustriaParticipantEUR 138,194known name (0.95)
St. Anna Kinderkrebsforschung GmbHATAustriaParticipantEUR 153,675PIC (1.00)
Department of Health Government of Western AustraliaAUAustraliaAssociated partnerEUR 0PIC (1.00)
Fonds de la Recherche Scientifique- FnrsBEBelgiumParticipantEUR 283,822known name (0.95)
Fonds Voor Wetenschappelijk Onderzoek-VlaanderenBEBelgiumParticipantEUR 620,594PIC (1.00)
Institut de Pathologie et de Genetique AsblBEBelgiumParticipantEUR 26,250PIC (1.00)
Katholieke Universiteit LeuvenBEBelgiumParticipantEUR 267,521PIC (1.00)
SciensanoBEBelgiumParticipantEUR 203,438known name (0.95)
Service Public de WallonieBEBelgiumParticipantEUR 871,299known name (0.95)
Ucb BiopharmaBEBelgiumAssociated partnerEUR 0PIC (1.00)
Universiteit AntwerpenBEBelgiumParticipantEUR 25,625known name (0.95)
Universiteit GentBEBelgiumParticipantEUR 99,375known name (0.95)
Universiteit HasseltBEBelgiumParticipantEUR 147,094known name (0.95)
Vib VzwBEBelgiumParticipantEUR 12,813known name (0.95)
Bulgarian National Science FundBGBulgariaParticipantEUR 88,169PIC (1.00)
Medical University SofiaBGBulgariaParticipantEUR 26,250PIC (1.00)
Redki Bolesti BulgariaBGBulgariaParticipantEUR 16,163PIC (1.00)
Canadian Institutes of Health ResearchCACanadaAssociated partnerEUR 0PIC (1.00)
Children's Hospital of Eastern Ontario Research Institute IncCACanadaAssociated partnerEUR 0PIC (1.00)
Fonds de Recherche du Quebec - SanteCACanadaAssociated partnerEUR 0PIC (1.00)
MicyrnCACanadaAssociated partnerEUR 0PIC (1.00)
Schweizerischer Nationalfonds Zur Forderung der Wissenschaftlichen ForschungCHSwitzerlandAssociated partnerEUR 0PIC (1.00)
Idryma Erevnas Kai KainotomiasCYCyprusParticipantEUR 870,293PIC (1.00)
Thalassaemia International FederationCYCyprusParticipantEUR 37,425PIC (1.00)
Agentura pro Zdravotnicky Vyzkum Ceske Republiky Azv CrCZCzechiaThird partyNot statedPIC (1.00)
Fakultni Nemocnice v MotoleCZCzechiaParticipantEUR 156,800known name (0.95)
Ministerstvo Zdravotnictvi Ceske RepublikyCZCzechiaParticipantEUR 447,832known name (0.95)
Bundesinstitut Fur Impfstoffe und Biomedizinische ArzneimittelDEGermanyParticipantEUR 128,535PIC (1.00)
Bundesministerium Fur Forschung, Technologie und RaumfahrtDEGermanyParticipantEUR 2,683,006known name (0.97)
Centogene GmbHDEGermanyParticipantEUR 75,000known name (0.95)
Charite - Universitaetsmedizin BerlinDEGermanyParticipantEUR 328,126PIC (1.00)
Checkimmune GmbHDEGermanyParticipantEUR 131,499PIC (1.00)
Deutsche Forschungsgemeinschaft EvDEGermanyAssociated partnerEUR 0known name (0.97)
Deutsches Zentrum Fur Luft - Und Raumfahrt EvDEGermanyParticipantEUR 277,026known name (0.97)
Eberhard Karls Universitaet TuebingenDEGermanyParticipantEUR 1,471,164PIC (1.00)
Fraunhofer Gesellschaft Zur Forderung der Angewandten Forschung EvDEGermanyParticipantEUR 382,533known name (0.95)
Johann Wolfgang Goethe-Universitaet Frankfurt Am MainDEGermanyParticipantEUR 41,488PIC (1.00)
Klinikum der Ludwig-Maximilians-Universitat MunchenDEGermanyThird partyNot statedknown name (0.97)
Ludwig-Maximilians-Universitaet MuenchenDEGermanyParticipantEUR 315,833PIC (1.00)
Miltenyi Biotec BV & Co KGDEGermanyAssociated partnerEUR 0PIC (1.00)
Technische Universitaet MuenchenDEGermanyParticipantEUR 341,563PIC (1.00)
Universitaetsklinikum AachenDEGermanyParticipantEUR 64,031PIC (1.00)
Universitaetsklinikum FreiburgDEGermanyParticipantEUR 200,462PIC (1.00)
Universitatsklinikum HeidelbergDEGermanyParticipantEUR 1,590,806known name (0.97)
Aarhus UniversitetshospitalDKDenmarkParticipantEUR 38,438known name (0.95)
Copenhagen Economics AsDKDenmarkParticipantEUR 253,484PIC (1.00)
InnovationsfondenDKDenmarkParticipantEUR 864,009known name (0.95)
Region HovedstadenDKDenmarkParticipantEUR 75,000known name (0.95)
Region Nordjylland (North Denmark Region)DKDenmarkParticipantEUR 26,250VAT number (0.97)
Sihtasutus Eesti TeadusagentuurEEEstoniaParticipantEUR 60,527known name (0.95)
SotsiaalministeeriumEEEstoniaParticipantEUR 60,977known name (0.95)
Tartu UlikoolEEEstoniaParticipantEUR 225,314known name (0.95)
Consorcio Centro de Investigacion Biomedica en Red M.P.ESSpainParticipantEUR 162,598PIC (1.00)
Consorcio Para la Explotacion del Centro Nacional de Analisis GenomicoESSpainParticipantEUR 981,393PIC (1.00)
Fundacio Centre de Regulacio GenomicaESSpainParticipantEUR 70,875known name (0.95)
Fundacio Hospital Universitari Vall D'Hebron - Institut de RecercaESSpainParticipantEUR 771,525known name (0.97)
Fundacio Privada Per a la Recerca i la Docencia Sant Joan de DeuESSpainParticipantEUR 100,691PIC (1.00)
Hipra Human Health SLESSpainAssociated partnerEUR 0PIC (1.00)
Hospital Sant Joan de DeuESSpainParticipantEUR 32,500known name (0.95)
Instituto de Salud Carlos IIIESSpainParticipantEUR 1,899,967VAT number (0.97)
Laboratorio Reig Jofre SAESSpainAssociated partnerEUR 0PIC (1.00)
Laboratorios Hipra SAESSpainAssociated partnerEUR 0PIC (1.00)
Teamit Research SLESSpainParticipantEUR 746,688PIC (1.00)
Universidad Politecnica de MadridESSpainParticipantEUR 538,439known name (0.95)
Universitat Autonoma de BarcelonaESSpainParticipantEUR 94,903known name (0.97)
Ita-Suomen YliopistoFIFinlandParticipantEUR 143,880known name (0.95)
Agence Nationale de la RechercheFRFranceParticipantEUR 3,907,279known name (0.95)
Ass Francaise Contre les MyopathiesFRFranceParticipantEUR 182,250PIC (1.00)
assistance publique hopitaux de parisFRFranceParticipantEUR 808,416name shared with others (0.80)
Association GenethonFRFranceParticipantEUR 448,964PIC (1.00)
Association Internationale de Standardisation Biologique Pour L'Europe(iabs-EU)FRFranceParticipantEUR 49,406PIC (1.00)
Centre Hospitalier Reg Universitaire DijonFRFranceParticipantEUR 111,563PIC (1.00)
Centre National de la Recherche Scientifique CnrsFRFranceParticipantEUR 106,176known name (0.95)
Collecteur Analyseur de DonnéesFRFranceThird partyNot statedPIC (1.00)
Ecrin European Clinical Research Infrastructure NetworkFRFranceParticipantEUR 28,925PIC (1.00)
Eurordis - Rare Diseases EuropeFRFranceParticipantEUR 811,033PIC (1.00)
Fondation Maladies RaresFRFranceParticipantEUR 983,388PIC (1.00)
Imagine Institut des Maladies Genetiques Necker Enfants Malades FondationFRFranceParticipantEUR 236,212PIC (1.00)
Mapi Research TrustFRFranceParticipantEUR 138,350PIC (1.00)
MyscienceworkFRFranceParticipantEUR 157,500PIC (1.00)
Rare Diseases InternationalFRFranceParticipantEUR 111,188PIC (1.00)
SonioFRFranceParticipantEUR 113,038PIC (1.00)
Sorbonne UniversiteFRFranceParticipantEUR 12,031known name (0.95)
TekkareFRFranceParticipantEUR 270,000PIC (1.00)
Universite D'Aix MarseilleFRFranceParticipantEUR 110,725known name (0.95)
Cambridge University Hospitals NHS Foundation TrustGBUnited KingdomAssociated partnerEUR 0known name (0.95)
Fraunhofer UK Research LimitedGBUnited KingdomAssociated partnerEUR 0PIC (1.00)
Fujifilm Diosynth Biotechnologies UK LimitedGBUnited KingdomAssociated partnerEUR 0PIC (1.00)
Genetic Alliance UK LtdGBUnited KingdomAssociated partnerEUR 0PIC (1.00)
The Chancellor Masters and Scholars of the University of CambridgeGBUnited KingdomAssociated partnerEUR 0known name (0.95)
The Queen's University of BelfastGBUnited KingdomAssociated partnerEUR 0PIC (1.00)
University College LondonGBUnited KingdomAssociated partnerEUR 0known name (0.95)
University of LeicesterGBUnited KingdomAssociated partnerEUR 0known name (0.95)
Georgian Foundation for Genetic and Rare DiseasesGEGeorgiaParticipantEUR 20,359PIC (1.00)
Enosi Spanion Asthenon ElladosGRGreeceParticipantEUR 39,925PIC (1.00)
Ethniko Kai Kapodistriako Panepistimio AthinonGRGreeceParticipantEUR 26,250PIC (1.00)
Panepistimio KritisGRGreeceParticipantEUR 26,250PIC (1.00)
Nemzeti Kutatasi Fejlesztesi Es Innovacios HivatalHUHungaryParticipantEUR 272,572known name (0.95)
Health Research Charities Ireland Company Limited By GuaranteeIEIrelandParticipantEUR 23,813PIC (1.00)
Royal College of Surgeons in IrelandIEIrelandParticipantEUR 38,438known name (0.95)
The Health Research BoardIEIrelandParticipantEUR 597,314known name (0.95)
University College Dublin, National University of Ireland, DublinIEIrelandParticipantEUR 29,065VAT number (0.97)
Bar Ilan UniversityILIsraelParticipantEUR 49,809PIC (1.00)
Rannsoknamidstod IslandsISIcelandParticipantEUR 150,500PIC (1.00)
Azienda Ospedaliera Universitaria Meyer IrccsITItalyParticipantEUR 38,438PIC (1.00)
Azienda Sanitaria Universitaria Friuli CentraleITItalyParticipantEUR 165,113known name (0.95)
Consorzio Per Valutazioni Biologiche e FarmacologicheITItalyParticipantEUR 138,638PIC (1.00)
Fondazione Per la Ricerca Farmacologica Gianni Benzi OnlusITItalyParticipantEUR 399,143PIC (1.00)
Fondazione Regionale Per la Ricerca BiomedicaITItalyParticipantEUR 1,282,839PIC (1.00)
Fondazione Telethon EtsITItalyParticipantEUR 1,401,160PIC (1.00)
Istituto Ortopedico RizzoliITItalyParticipantEUR 16,250PIC (1.00)
Istituto Superiore di SanitaITItalyParticipantEUR 74,031known name (0.95)
Ministero Dell'Universita e della RicercaITItalyParticipantEUR 861,174PIC (1.00)
Ministero della SaluteITItalyParticipantEUR 865,674known name (0.95)
Ospedale Pediatrico Bambino GesuITItalyParticipantEUR 87,188PIC (1.00)
Ospedale San Raffaele SRLITItalyParticipantEUR 314,289PIC (1.00)
Regione ToscanaITItalyParticipantEUR 281,700known name (0.95)
Reithera SRLITItalyAssociated partnerEUR 0PIC (1.00)
Teddy - European Network of Excellence for Paediatric Clinical ResearchITItalyParticipantEUR 35,900PIC (1.00)
Universita Cattolica del Sacro CuoreITItalyParticipantEUR 81,232known name (0.95)
Universita Degli Studi della Campania Luigi VanvitelliITItalyParticipantEUR 38,438known name (0.95)
Universita Degli Studi di Roma la SapienzaITItalyParticipantEUR 42,589known name (0.95)
Universita Degli Studi di SienaITItalyParticipantEUR 38,438known name (0.95)
Lietuvos mokslo tarybaLTLithuaniaParticipantEUR 152,891known name (0.95)
Viesoji Istaiga Vilniaus Universiteto Ligonine Santaros KlinikosLTLithuaniaParticipantEUR 366,113known name (0.95)
Fonds National de la RechercheLULuxembourgParticipantEUR 313,158PIC (1.00)
Bernu Kliniska Universitates Slimnica Valsts SiaLVLatviaParticipantEUR 117,803VAT number (0.97)
Latvijas Zinatnes PadomeLVLatviaParticipantEUR 103,436PIC (1.00)
Rigas Austrumu Kliniska Universitates Slimnica SiaLVLatviaParticipantEUR 94,913VAT number (0.97)
Rigas Stradina UniversitateLVLatviaParticipantEUR 15,430known name (0.95)
Universite Cadi AyyadMAMoroccoParticipantEUR 34,497PIC (1.00)
Academisch Ziekenhuis GroningenNLNetherlandsParticipantEUR 796,783PIC (1.00)
Academisch Ziekenhuis LeidenNLNetherlandsParticipantEUR 648,578PIC (1.00)
CONECT4CHILDREN StichtingNLNetherlandsParticipantEUR 53,311PIC (1.00)
Critical Path Institute StichtingNLNetherlandsParticipantEUR 462,301PIC (1.00)
Eatris EricNLNetherlandsParticipantEUR 508,355PIC (1.00)
Elsevier BVNLNetherlandsParticipantEUR 210,600PIC (1.00)
Erasmus Universitair Medisch Centrum RotterdamNLNetherlandsParticipantEUR 408,989PIC (1.00)
Stichting Amsterdam UmcNLNetherlandsParticipantEUR 334,399known name (0.95)
Stichting Duchenne Data FoundationNLNetherlandsParticipantEUR 142,413PIC (1.00)
Stichting Radboud Universitair Medisch CentrumNLNetherlandsParticipantEUR 1,581,525PIC (1.00)
Stichting World Duchenne OrganizationNLNetherlandsParticipantEUR 96,539PIC (1.00)
Universiteit MaastrichtNLNetherlandsParticipantEUR 183,663known name (0.95)
Universiteit TwenteNLNetherlandsParticipantEUR 188,560known name (0.95)
Zorgonderzoek Nederland ZonNLNetherlandsParticipantEUR 1,990,795PIC (1.00)
Norges ForskningsradNONorwayParticipantEUR 464,271known name (0.95)
University of OtagoNZNew ZealandParticipantEUR 31,800PIC (1.00)
Instytut Genetyki Czlowieka Polskiej Akademii NaukPLPolandParticipantEUR 26,250known name (0.97)
Narodowe Centrum Badan i RozwojuPLPolandParticipantEUR 1,026,060known name (0.97)
Aicib - Agencia de Investigacao Clinica e Inovacao BiomedicaPTPortugalParticipantEUR 80,210PIC (1.00)
Fundacao Para a Ciencia e a TecnologiaPTPortugalParticipantEUR 316,043VAT number (0.97)
Instituto Nacional de Saude Dr. Ricardo JorgePTPortugalParticipantEUR 44,280known name (0.95)
Universidade de CoimbraPTPortugalParticipantEUR 379,015known name (0.95)
Unitatea Executiva Pentru Finantarea Invatamantului Superior a Cercetarii Dezvoltarii Si InovariiRORomaniaParticipantEUR 864,279PIC (1.00)
Institut za Molekularnu Genetiku i Geneticko InzenjerstvoRSSerbiaParticipantEUR 28,224PIC (1.00)
Astrazeneca ABSESwedenAssociated partnerEUR 0PIC (1.00)
Region SkaneSESwedenParticipantEUR 18,938known name (0.95)
Region StockholmSESwedenParticipantEUR 18,938known name (0.95)
Uppsala UniversitetSESwedenParticipantEUR 246,944known name (0.95)
Verket for InnovationssystemSESwedenParticipantEUR 425,957known name (0.95)
Vetenskapsradet - Swedish Research CouncilSESwedenParticipantEUR 437,258PIC (1.00)
Institut Jozef StefanSISloveniaParticipantEUR 38,925known name (0.95)
Univerzitetni Klinicni Center LjubljanaSISloveniaParticipantEUR 38,438known name (0.95)
Ministerstvo Zdravotnictva Slovenskej RepublikySKSlovakiaParticipantEUR 56,175known name (0.95)
Slovenska Akademia ViedSKSlovakiaParticipantEUR 52,170known name (0.95)
Acibadem Mehmet Ali Aydinlar UniversityTRTürkiyeParticipantEUR 8,973PIC (1.00)
Izmir Biyotip Ve Genom MerkeziTRTürkiyeParticipantEUR 222,311PIC (1.00)
Turkiye Bilimsel Ve Teknolojik Arastirma KurumuTRTürkiyeParticipantEUR 458,588PIC (1.00)
Pfizer IncUSUnited StatesAssociated partnerEUR 0PIC (1.00)

Changes of the consortium

First seen on with 174 participants from 38 countries.

A snapshot of each project's members is taken once a month; a change is recorded when a snapshot differs from the one before. A project with no change listed has had the same members since it was first observed.

Project page on CORDIS (opens in new tab)

Where this comes from

EU contribution is the amount CORDIS's open data pays to the participant. For a participant with linked third parties it may include their share (the CORDIS page prints the net); an amount the data does not hold is left out, not counted as zero. EDF factsheets state none per participant, so EDF projects count as projects but add nothing to the amounts.

Organisation-level facts only: a name, a country, a role, an amount, a year. A participant is recognised by its PIC where the source gives one, otherwise by name; the page says which. How the data is built.