FP7
RARE-BESTPRACTICES
Platform for sharing best practices for management of rare diseases
- Programme
- Seventh Framework Programme
- Started
- Ends
- Duration
- 48 months
- Total cost
- EUR 2,293,655
- EU contribution
- EUR 2,000,000
- Participants
- 15 from 9 countries
- Topic
- FP7_HEALTH.2012.2.4.4-3
- Grant agreement
- 305690
Coordinated by Istituto Superiore di Sanita (ITItaly).
Consortium
EU contribution per participant as the open data of CORDIS states it; for a participant with linked third parties it may include their share, and a participant whose amount the data does not hold or cannot make consistent shows Not stated. A participant who left the project is not listed; see the history below.
| Organisation | Country | Role | EU contribution | Recognised by |
|---|---|---|---|---|
| Istituto Superiore di Sanita | ITItaly | Coordinator | EUR 653,477 | known name (0.95) |
| European Academy of Paediatrics | BEBelgium | Participant | EUR 30,000 | PIC (1.00) |
| Bulgarian Association for Promotion of Education and Science | BGBulgaria | Participant | EUR 60,584 | PIC (1.00) |
| Universitaetsklinikum Freiburg | DEGermany | Participant | EUR 176,200 | PIC (1.00) |
| Fundacion Canaria de Investigacion y Salud | ESSpain | Participant | Not stated | PIC (1.00) |
| Fundacion Canaria Instituto de Investigacion Sanitaria de Canarias | ESSpain | Participant | Not stated | PIC (1.00) |
| Instituto de Salud Carlos III | ESSpain | Participant | EUR 60,000 | VAT number (0.97) |
| Servicio Canario de la Salud | ESSpain | Participant | EUR 61,000 | known name (0.95) |
| Eurordis - Rare Diseases Europe | FRFrance | Participant | EUR 168,000 | PIC (1.00) |
| Healthcare Improvement Scotland | GBUnited Kingdom | Participant | EUR 120,634 | known name (0.95) |
| Jamarau | GBUnited Kingdom | Participant | EUR 210,000 | PIC (1.00) |
| London School of Economics and Political Science | GBUnited Kingdom | Participant | EUR 121,304 | PIC (1.00) |
| Associazione per la Ricerca sulla Efficacia della Assistenza Sanitaria Centro Cochrane Italiano | ITItaly | Participant | EUR 100,000 | PIC (1.00) |
| Universiteit Maastricht | NLNetherlands | Participant | EUR 40,000 | known name (0.95) |
| Karolinska Institutet | SESweden | Participant | EUR 63,800 | known name (0.95) |
Changes of the consortium
First seen on with 15 participants from 9 countries.
A snapshot of each project's members is taken once a month; a change is recorded when a snapshot differs from the one before. A project with no change listed has had the same members since it was first observed.
Project page on CORDIS (opens in new tab)
Where this comes from
- CORDIS: EU research projects (Horizon Europe, Horizon 2020, FP7)Last read on . Licence: Commission Decision 2011/833/EU (reuse of Commission documents). Source: CORDIS, European Commission.Participants and amounts as the Commission's CORDIS database states them.
EU contribution is the amount CORDIS's open data pays to the participant. For a participant with linked third parties it may include their share (the CORDIS page prints the net); an amount the data does not hold is left out, not counted as zero. EDF factsheets state none per participant, so EDF projects count as projects but add nothing to the amounts.
Organisation-level facts only: a name, a country, a role, an amount, a year. A participant is recognised by its PIC where the source gives one, otherwise by name; the page says which. How the data is built.