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H2020HORIZONFP7

Eurordis - Rare Diseases Europe

Country
FRFrance
Defence projects
0
Projects, all programmes
23
As coordinator
0
EU contribution (CORDIS)
EUR 8,490,791
Active
2012 to 2025

Projects

23 projects, newest first

Projects, newest first
ProjectProgrammeYearRoleEU contribution
PERIFORMANCEPUBLIC ENGAGEMENT IN RESEARCH INFRASTRUCTURES FOR MISSION CANCER: MANAGING COMPLEXITY OF EMERGING TECHNOLOGIESHORIZON2025ParticipantEUR 20,000
RealiseDComprehensive methodological and operational approach to clinical trials in rare and ultra-rare diseasesHORIZON2025ParticipantEUR 505,000
JOIN4ATMPMAP, JOIN AND DRIVE EUROPEAN ACTIVITIES FOR ADVANCED THERAPY MEDICINAL PRODUCT DEVELOPMENT AND IMPLEMENTATION FOR PATIENT AND SOCIETY BENEFITHORIZON2024ParticipantEUR 102,188
ERDERAEUROPEAN RARE DISEASES RESEARCH ALLIANCEHORIZON2024ParticipantEUR 811,033
More-EUROPAMore Effectively Using Registries to suppOrt PAtient-centered Regulatory and HTA decision-makingHORIZON2023ParticipantEUR 64,375
MMMMedicine Made to Measure.HORIZON2023Associated partnerEUR 0
FACILITATEFrAmework for ClInicaL trIal participants daTA reutilization for a fully Transparent and Ethical ecosystemH20202022ParticipantEUR 140,250
REMEDi4ALLBUILDING A SUSTAINABLE EUROPEAN INNOVATION PLATFORM TO ENHANCE THE REPURPOSING OF MEDICINES FOR ALLHORIZON2022ParticipantEUR 1,388,725
SCREEN4CAREShortening the path to rare disease diagnosis by using newborn genetic screening and digital technologiesH20202021ParticipantEUR 736,895
ERICAEuropean Rare dIsease research Coordination and support ActionH20202021ParticipantEUR 143,675
HTxNext Generation Health Technology Assessment to support patient-centred, societally oriented, real-time decision-making on access and reimbursement for health technologies throughout EuropeH20202019ParticipantEUR 625,908
EJP RDEuropean Joint Programme on Rare DiseasesH20202019ParticipantEUR 941,764
Solve-RDSolving the unsolved Rare DiseasesH20202018ParticipantEUR 375,000
PARADIGMPatients Active in Research and Dialogues for an Improved Generation of Medicines: Advancing meaningful patient engagement in the life cycle of medicines for better health outcomes.H20202018ParticipantEUR 463,598
c4cconect4children (COllaborative Network for European Clinical Trials For Children)H20202018ParticipantEUR 653,750
AEGISAccelerated Early staGe drug diScoveryH20202016PartnerEUR 0
GCOFA stepping stone approach towards the Genetics Clinic of the FutureH20202015ParticipantEUR 72,544
ADAPT-SMARTAccelerated Development of Appropriate Patient Therapies: a Sustainable, Multi-stakeholder Approach from Research to Treatment-outcomes - Sofia ref.: 115890H20202015ParticipantEUR 78,000
WEB-RADRRecognising Adverse Drug ReactionsFP72014ParticipantEUR 80,475
RARE-BESTPRACTICESPlatform for sharing best practices for management of rare diseasesFP72013ParticipantEUR 168,000

The country is the one the source records for the organisation’s registration (its PIC), and each profile says what it rests on. Where the record contradicts itself (the address in one country, the site name and the VAT number in another) we follow the two that agree: the Spanish research council CSIC is shown under Spain although its address is recorded in Italy. A body with sites in several countries is shown under the first of them in alphabetical order, and its profile lists the others. Beyond that we do not guess.

Where this comes from

EU contribution is the amount CORDIS's open data pays to the participant. For a participant with linked third parties it may include their share (the CORDIS page prints the net); an amount the data does not hold is left out, not counted as zero. EDF factsheets state none per participant, so EDF projects count as projects but add nothing to the amounts.

Organisation-level facts only: a name, a country, a role, an amount, a year. A participant is recognised by its PIC where the source gives one, otherwise by name; the page says which. How the data is built.

Names are as CORDIS and the EDF project factsheets publish them. We do not list an organisation whose name looks like a natural person’s. If this entry is you, or a business named after you, and you want it removed, write to the contact in the imprint; the privacy notice (sections 7 and 9) says how a request is handled.